Wednesday, June 15, 2011
Well after 9 years we finally have this thing down! We have raised an unbelievable one-hundred,five-thousand dollars for 2011 and the donations keep coming in. Nine years ago when we entered into this journey we call fundraising the life expectancy for those with cystic fibrosis was a measly 25 years old. Now today the life expectancy is 37 years of age. 37 still isn't long enough but the amount of drugs and treatments available today has more than quadrupled since we had our first event. The newest drug on the horizon is aimed at the basic defect and the initial research is very promising.This means cf patients could take a pill to lesson the affects of their disease and ultimately live long productive lives free of the cruelty that cf leaves behind. So when you hear,"dollars buy science and science buys life for those with cystic fibrosis", Sal is living proof that these dollars are providing the necessary drugs and treatments that are keeping him healthy and strong.
Thanks so much to our committee and all of our volunteers for sharing of your time and talents. Special congrats to Erin Dzierwa and Angie O'Loughlin who are the 2011 Spirit of Humanity award winners. Dan Haffner of Haffner Florists and Jean and Joe Papp were honored this year for Sponsoring the Sal's Pals Event every year since it's existence.New friends of Sal's Pals, all the way from New York are The Cassalina Family. Margarete and Marc have two children with cystic fibrosis and have dedicated their lives to finding a cure. Margarete's book, Beyond Breathing gives us an account of her life's journey with cystic fibrosis. It's an amazing story and your life will surely be changed from reading this treasure. Margarete came all the way from New York to be our guest speaker and the audiance loved her!
Bp Oil and UPS Auto Logistics continue to be Title Sponsors for the Event. Both companies recently finished their respective golf outings and continue to help us in our fight against cf. Special thanks to Terry Jiannuzzi from BP, Jeremy Reinhart and Dave Sprock from UPS. These gentlemen continue to influence the individuals around them and help spread awareness of cystic fibrosis that in turn leads to funds for vital research. Thank you could never be enough for all that you do but I know that's not what motivates you!But I will say it any way, Thanks for all of your hard work and preparation in planning the golf outings.
Annie and Lena's Kiddie Carnival is coming up next! We hope you can join us!